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    Last Updated: 01/09/2026

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    MediFind found 5 doctor with experience in Pycnodysostosis near Grand Rapids, MI. Of these, 5 are Experienced.

    Location
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    5 providers found
      Anna Carlson
      Experienced in Pycnodysostosis
      Pediatrics | General Surgery
      Experienced in Pycnodysostosis
      Pediatrics | General Surgery

      Corewell Health Pediatric Craniofacial And Plastic Surgery - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5201, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      12+ years
      Languages Spoken:
      English
      Accepting New Patients

      Anna Carlson is a Pediatrics specialist and a General Surgeon in Grand Rapids, Michigan. Dr. Carlson has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Pycnodysostosis. Her top areas of expertise are Micrognathia, Sunken Fontanelles, Multiple Epiphyseal Dysplasia, Osteotomy, and Bone Graft. Dr. Carlson is currently accepting new patients.

      John W. Kemppainen
      Experienced in Pycnodysostosis
      Pediatric Orthopedics
      Experienced in Pycnodysostosis
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      19+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Kemppainen is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Kemppainen has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Pycnodysostosis. His top areas of expertise are Clubfoot, Legg-Calve-Perthes Disease (LCPD), Knock Knees, and Small Patella Syndrome. Dr. Kemppainen is currently accepting new patients.

      Philip D. Nowicki
      Experienced in Pycnodysostosis
      Pediatric Orthopedics
      Experienced in Pycnodysostosis
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      22+ years
      Languages Spoken:
      English
      Accepting New Patients

      Philip Nowicki is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Nowicki has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Pycnodysostosis. His top areas of expertise are Slipped Capital Femoral Epiphysis, Clubfoot, Legg-Calve-Perthes Disease (LCPD), and Knock Knees. Dr. Nowicki is currently accepting new patients.

      Learn about our expert tiers
      Michael R. Stevens
      Experienced in Pycnodysostosis
      Pediatric Orthopedics
      Experienced in Pycnodysostosis
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Michael Stevens is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Stevens has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Pycnodysostosis. His top areas of expertise are Knock Knees, Clubfoot, Small Patella Syndrome, and Sandhaus Ben-Ami Syndrome. Dr. Stevens is currently accepting new patients.

      Chad E. Afman
      Experienced in Pycnodysostosis
      Pediatric Otolaryngology
      Experienced in Pycnodysostosis
      Pediatric Otolaryngology

      Corewell Health Ear, Nose And Throat - 4069 Lake Dr SE

      4069 Lake Drive Southeast, Suite 315, 
      Grand Rapids, MI 
       (7.8 miles away)
      Experience:
      24+ years
      Languages Spoken:
      English
      Accepting New Patients

      Chad Afman is a Pediatric Otolaryngologist in Grand Rapids, Michigan. Dr. Afman has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Pycnodysostosis. His top areas of expertise are Laryngomalacia, Enlarged Adenoids, CHARGE Syndrome, and Koolen De Vries Syndrome. Dr. Afman is currently accepting new patients.

      Showing 1-5 of 5

      Last Updated: 01/09/2026

      What is the definition of Pycnodysostosis?

      Pycnodysostosis impacts bone growth and is present from birth. Symptoms include a large head and high forehead, undeveloped facial bones, and short fingers and toes. People with Pycnodysostosis may have short stature, dental abnormalities, brittle bones, and delayed closure of the skull bones. Bones may become more brittle with age. Other complications like trouble breathing during sleep (sleep apnea) and bone infections may occur. Pycnodysostosis is caused by a CTSK gene that is not working correctly and inherited in an autosomal recessive pattern. The diagnosis of Pycnodysostosis is based on clinical examination and X-ray findings, and is confirmed by genetic testing.

      When should I see a Pycnodysostosis doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Pycnodysostosis doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Pycnodysostosis doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Pycnodysostosis doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Pycnodysostosis doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Pycnodysostosis doctor search results page. 

      Why is it important to get a second opinion from a different Pycnodysostosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Pycnodysostosis doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Pycnodysostosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Pycnodysostosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Pycnodysostosis doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Pycnodysostosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Pycnodysostosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Pycnodysostosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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